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Fatigatio e.V.

"Wir informieren über Diagnose- und Therapiemöglichkeiten und bieten Informationen an"

Um die Lebensperspektiven für Menschen mit ME/CFS zu verbessern.

Unter dem Titel „DecodeME“ startet die größte genetische ME/CFS Studie im September in Großbritannien (decodeme.org.uk)

Datum: 23.06.2020 Kategorie: 07 Fatigatio e.V. Autor: MKK (kanter)

Die Studie wird mit £3,2 Mio. finanziert und ist auf 20.000 Teilnehmer ausgerichtet. Über die unten verlinkte Webseite können Erkrankte sich dafür registrieren.

Patients, scientists and advocates celebrate £3.2m funding for DecodeME, the largest ever ME/CFS DNA study

Funding for the world’s largest genetic study into myalgic encephalomyelitis (ME), led by a partnership of patients and scientists, has been announced today.

Despite its high cost to patients, the economy, the NHS and society, very little is known about the causes of ME, also diagnosed as chronic fatigue syndrome (CFS, or ME/CFS), including how to treat it effectively.

Now, thanks to £3.2 million funding, awarded jointly by the Medical Research Council and National Institute for Health Research, work can begin on DecodeME, the ME/CFS DNA study that hopes to reveal the tiny differences in a person’s DNA that may affect their risk of developing ME/CFS, and the underlying causes of the condition.

DecodeME will look at samples from 20,000 people with ME/CFS, in the hope that the knowledge discovered will aid development of diagnostic tests and targeted treatments.

ME/CFS affects an estimated 250,000 people in the UK, of all ages, and from all social and economic backgrounds. Post-exertional malaise, an adverse reaction to levels of exertion that many might consider trivial, is often considered to be the defining symptom - this can leave patients suffering from symptoms including extreme levels of fatigue, pain, inability to process information, and light and noise sensitivities. One in four people with ME/CFS are so severely affected they are house- and frequently bed-bound.

Mehr Infos unter: https://www.decodeme.org.uk/largest-me-cfs-dna-study-receives-over-3m-funding/